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Resources to live well with SMA

Neuromuscular clinics provide specialised care for neuromuscular
conditions, including SMA. Coordinated care through a
neurologist is recommended, and SMA clinics offer proactive care.

Stander

Individuals who are unable to stand independently can be helped into a standing position through a stander. Standing puts weight on bones, which may improve bone and muscle strength. There are standers that are stationary and some that are able to be moved (dynamic standers).1

Stander
Stander
Stander

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Home modifications
Home modifications

Changes to the structure or fittings of your home can improve safety and comfort…1

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What is the NDIS?
What is the NDIS?

The National Disability Insurance Scheme (NDIS) provides supports and services...2

LEARN MORE
References:

1.SMA News Today. Available at: https://smanewstoday.com/specialized-equipment-for-spinal-muscular-atrophy/ Accessed on 16 June 2025.

2.What is the NDIS?: https://www.ndis.gov.au/understanding/what-ndis Accessed 03 July 2025.

1. Faravelli I et al. Nat Rev Neurol 2015; 11: 351‑9.

2. Lunn MR and Wang CH. Lancet 2008; 371: 2120‑33.

3. Cure SMA. Understanding SMA. https://www.curesma.org/wp-content/uploads/2020/08/08262020_Understanding_SMA_vWeb.pdf.Accessed: May 2025.

4. Wang CH et al. J Child Neurol 2007; 22: 1027‑49.

5. Rossoll W and Bassell GJ. Results Probl Cell Differ 2009; 48: 289‑326.

6. Butchbach M. Front Mol Biosci 2016; 3: 7.

7. Kaczmarek A et al. Expert Opin Investig Drugs 2015; 24: 867‑81.

8. Munsat TL and Davies KE. Neuromuscul Disord 1992; 2(5‑6): 423‑8.

9. D’Amico A et al. Orphanet J Rare Dis 2011; 6: 71.

10. Farrar MA et al. Emerging therapies and challenges in spinal muscular atrophy. Ann Neurol. 2017;81(3):355‑368.

11. Kolb S and Kissel J. Neurol Clin 2015; 33: 831‑46.