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Resources to live well with SMA

Neuromuscular clinics provide specialised care for neuromuscular
conditions, including SMA. Coordinated care through a
neurologist is recommended, and SMA clinics offer proactive care.

"I don't want to talk about my disabliity all the time, there is a lot more to me than that. My SMA is an important part, don't get me wrong, but it's only one part and I feel like I have got a lot to offer in many ways, regardless of SMA.

I'm not Ellie with SMA.
I'm just Ellie." - Ellie

I don't want to talk about my disabliity all the time
I don't want to talk about my disabliity all the time
I don't want to talk about my disabliity all the time

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Juanita
Juanita

Living with SMA has fostered many qualities within me, such as respect for others, compassion, patience, resilience, kindness, appreciation, and a great sense of humour...

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