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Resources to live well with SMA

Neuromuscular clinics provide specialised care for neuromuscular
conditions, including SMA. Coordinated care through a
neurologist is recommended, and SMA clinics offer proactive care.

Pulse oximeter

A pulse oximeter measures the percentage of oxygen in the blood by using a small clip or tape with a sensor placed on a finger or toe. Individuals with SMA may need extra breathing support, particularly while sleeping, if their oxygen levels drop too low.1

Pulse oximeter
Pulse oximeter
Pulse oximeter

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Bilevel positive airway pressure machine
Bilevel positive airway pressure machine

A bilevel positive airway pressure machine provides a high volume of air into the lungs during inhalation…1

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Wheelchair
Wheelchair

There are many different types of wheelchairs, both manual and power…1

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References:

1.SMA News Today. Available at: https://smanewstoday.com/specialized-equipment-for-spinal-muscular-atrophy/ Accessed on 16 June 2025.

1. Faravelli I et al. Nat Rev Neurol 2015; 11: 351‑9.

2. Lunn MR and Wang CH. Lancet 2008; 371: 2120‑33.

3. Cure SMA. Understanding SMA. https://www.curesma.org/wp-content/uploads/2020/08/08262020_Understanding_SMA_vWeb.pdf.Accessed: May 2025.

4. Wang CH et al. J Child Neurol 2007; 22: 1027‑49.

5. Rossoll W and Bassell GJ. Results Probl Cell Differ 2009; 48: 289‑326.

6. Butchbach M. Front Mol Biosci 2016; 3: 7.

7. Kaczmarek A et al. Expert Opin Investig Drugs 2015; 24: 867‑81.

8. Munsat TL and Davies KE. Neuromuscul Disord 1992; 2(5‑6): 423‑8.

9. D’Amico A et al. Orphanet J Rare Dis 2011; 6: 71.

10. Farrar MA et al. Emerging therapies and challenges in spinal muscular atrophy. Ann Neurol. 2017;81(3):355‑368.

11. Kolb S and Kissel J. Neurol Clin 2015; 33: 831‑46.