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Resources to live well with SMA

Neuromuscular clinics provide specialised care for neuromuscular
conditions, including SMA. Coordinated care through a
neurologist is recommended, and SMA clinics offer proactive care.

Cough assist machine

A cough assist machine helps to produce a more productive cough by gradually applying air into the lungs on inhale and quickly reversing the flow on exhale to push secretions out, allowing them to be removed from the mouth with a suction machine.1

Cough assist machine
Cough assist machine
Cough assist machine

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Pulse oximeter
Pulse oximeter

A pulse oximeter measures the percentage of oxygen in the blood…1

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Bilevel positive airway pressure machine
Bilevel positive airway pressure machine

A bilevel positive airway pressure machine provides a high volume of air into the lungs during inhalation…1

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References:

1. SMA News Today. Available at: https://smanewstoday.com/specialized-equipment-for-spinal-muscular-atrophy/ Accessed on 16 June 2025.

1. Faravelli I et al. Nat Rev Neurol 2015; 11: 351‑9.

2. Lunn MR and Wang CH. Lancet 2008; 371: 2120‑33.

3. Cure SMA. Understanding SMA. https://www.curesma.org/wp-content/uploads/2020/08/08262020_Understanding_SMA_vWeb.pdf.Accessed: May 2025.

4. Wang CH et al. J Child Neurol 2007; 22: 1027‑49.

5. Rossoll W and Bassell GJ. Results Probl Cell Differ 2009; 48: 289‑326.

6. Butchbach M. Front Mol Biosci 2016; 3: 7.

7. Kaczmarek A et al. Expert Opin Investig Drugs 2015; 24: 867‑81.

8. Munsat TL and Davies KE. Neuromuscul Disord 1992; 2(5‑6): 423‑8.

9. D’Amico A et al. Orphanet J Rare Dis 2011; 6: 71.

10. Farrar MA et al. Emerging therapies and challenges in spinal muscular atrophy. Ann Neurol. 2017;81(3):355‑368.

11. Kolb S and Kissel J. Neurol Clin 2015; 33: 831‑46.