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Resources to live well with SMA

Neuromuscular clinics provide specialised care for neuromuscular
conditions, including SMA. Coordinated care through a
neurologist is recommended, and SMA clinics offer proactive care.

Wheelchair

There are many different types of wheelchairs, both manual and power. Manual wheelchairs can be controlled from the chair or pushed by a caregiver. Power chairs are controlled electronically, typically by a joystick, enabling mobility without help from others. If muscle strength or control is an issue, joystick placement can be modified and adapted to fit individual needs.1

Wheelchair
Wheelchair
Wheelchair

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Car bed
Car bed

A car bed allows individuals to lie down more comfortably while traveling in a car…1

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Stander
Stander

Individuals who are unable to stand independently can be helped into a standing position through a stander…1

LEARN MORE
References:

1.SMA News Today. Available at: https://smanewstoday.com/specialized-equipment-for-spinal-muscular-atrophy/ Accessed on 16 June 2025.

1. Faravelli I et al. Nat Rev Neurol 2015; 11: 351‑9.

2. Lunn MR and Wang CH. Lancet 2008; 371: 2120‑33.

3. Cure SMA. Understanding SMA. https://www.curesma.org/wp-content/uploads/2020/08/08262020_Understanding_SMA_vWeb.pdf.Accessed: May 2025.

4. Wang CH et al. J Child Neurol 2007; 22: 1027‑49.

5. Rossoll W and Bassell GJ. Results Probl Cell Differ 2009; 48: 289‑326.

6. Butchbach M. Front Mol Biosci 2016; 3: 7.

7. Kaczmarek A et al. Expert Opin Investig Drugs 2015; 24: 867‑81.

8. Munsat TL and Davies KE. Neuromuscul Disord 1992; 2(5‑6): 423‑8.

9. D’Amico A et al. Orphanet J Rare Dis 2011; 6: 71.

10. Farrar MA et al. Emerging therapies and challenges in spinal muscular atrophy. Ann Neurol. 2017;81(3):355‑368.

11. Kolb S and Kissel J. Neurol Clin 2015; 33: 831‑46.