Resources to live well with SMA

Neuromuscular clinics provide specialised care for neuromuscular
conditions, including SMA. Coordinated care through a
neurologist is recommended, and SMA clinics offer proactive care.

Home modifications

What changes could you consider?

Changes to the structure or fittings of your home can improve safety and comfort as well as increasing your independence.

Home modifications may be included in your NDIS plan. As they can range from simple to complex, you may need an occupational therapist to help you decide what is best for your situation and ensure you get the most benefit.1

Simple changes

Simple changes are usually inexpensive, quick and effective without any redesigning needed.1 Examples include:

  • Non-slip mats
  • Grab rails
  • Handrails
  • Lever taps and door handles
  • Step wedges
  • Sensor lights
  • Doorway widening

Complex or specialised changes

Complex or specialised changes usually require professional support and may or may not require structural changes.1 Examples include:

  • Ramp installation
  • Lowering kitchen benchtops
  • Movable cabinets
  • Bathroom modifications
Home modifications
Home modifications
Home modifications
References:

1.NDIS: Home modifications. Available at: https://ourguidelines.ndis.gov.au/print/pdf/node/3752 Accessed on 16 June 2025.

1. Faravelli I et al. Nat Rev Neurol 2015; 11: 351‑9.

2. Lunn MR and Wang CH. Lancet 2008; 371: 2120‑33.

3. Cure SMA. Understanding SMA. https://www.curesma.org/wp-content/uploads/2020/08/08262020_Understanding_SMA_vWeb.pdf.Accessed: May 2025.

4. Wang CH et al. J Child Neurol 2007; 22: 1027‑49.

5. Rossoll W and Bassell GJ. Results Probl Cell Differ 2009; 48: 289‑326.

6. Butchbach M. Front Mol Biosci 2016; 3: 7.

7. Kaczmarek A et al. Expert Opin Investig Drugs 2015; 24: 867‑81.

8. Munsat TL and Davies KE. Neuromuscul Disord 1992; 2(5‑6): 423‑8.

9. D’Amico A et al. Orphanet J Rare Dis 2011; 6: 71.

10. Farrar MA et al. Emerging therapies and challenges in spinal muscular atrophy. Ann Neurol. 2017;81(3):355‑368.

11. Kolb S and Kissel J. Neurol Clin 2015; 33: 831‑46.

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